Short story:
Had a bad week followed by a pretty good one.
A journey
Thanks to my brother in law for greasing the wheels at UW, nice to have a doctor in the family. π
After initial rapid response to boosted Prednisone and addition of Mycophenolate, body plateaued as far as sore improvement. Appetite, on the other hand, has continued to soar through the roof, in part because Iβm not getting a signal from the stomach that itβs full. Whether this is the drug(s) or reduced saliva due to not chewing β¦ unknown. Energy is better (fewer naps). Iβve regained a couple of pounds. And had my first setback.
Kathy did it again. Her determination to understand, her insistence on getting data vital to making informed decisions, and her fearlessness at asking questions, resulted in Dr. O.
We are very happy to have found Dr. John Olerud at UW Medicine. Much more aggressive approach to treatment. I’m feeling better and Kathy says the sores on my back are responding.
Second derm doc visit since diagnosis (on 21Dec2016). He set the next appointment for a month. A month, really???