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Month: February 2017

Posted on 28 February 20171 June 2017

Life with Mikey, the Rituxan infusion

rituxan

Quick update:

Rituxan infusion finished Monday evening with no side affects so far. Dr O apt Tuesday continues 60 mg daily prednisone until after next infusion: 13Mar.

Continue reading “Life with Mikey, the Rituxan infusion”

Posted on 28 February 20175 August 2017

Rare disease day, 2017

February 28, 2017 is rare disease day (the last day in February each year).

On Rare Disease Day, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes and needs of those living with rare diseases. This day of awareness was launched in Europe in 2008 by EURORDIS; it is now observed in almost 100 nations.

Continue reading “Rare disease day, 2017”

Posted on 26 February 20171 June 2017

Life with Mikey, 6

gf cupcake

Short story

On reduced prednisone; treatment door number three opens on Monday with an infusion of Rituxan (rituximab).

Continue reading “Life with Mikey, 6”

Posted on 7 February 20174 June 2017

Life with Mikey, 5

pool-balls-1000

Short story:

Had a better week than in the prior report. “Better” being highlighted by playing pool with my team. πŸ™‚

Much easier to eat. But the second trial of MMF led to the same conclusion as the first: my body doesn’t tolerate the drug.

Continue reading “Life with Mikey, 5”

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