Late on Monday 15 May, after business hours, my oncologist called. I had almost convinced myself that she wouldn’t call until Tuesday because there was nothing going on. And then the phone rang.
In December, Mike was diagnosed with pemphigus vulgaris, a rare (1-in-a-million) autoimmune disease. He’s the first in his family that we know of to experience this genetic disorder.
In May, Kathy was diagnosed with breast cancer.
This is our journey. Some posts are backdated.
It’s been a while since we checked in …
Short story #1:
Prednisone reduction continues. Taste buds making a recovery! Energy levels continue to rise, but I’m still not always aware that I’ve crossed the energy line until it’s too late.
Prednisone reduction continues. Taste buds still AWOL, but Friday I detected “sweet” (sorta). Energy levels continue to increase albeit gradually.
Continue to reduce prednisone; second infusion of Rituxan (rituximab) was uneventful. Energy levels continue to increase (slightly) but it’s easy to over-do. Taste buds still AWOL.